By Lisa Petrison, Ph.D.
A recent survey presented to the community by Paradigm Change and ME Advocacy asked a total of 1,147 people about their opinions of a possible name change for the disease “ME/CFS,” as was recently proposed in an Institute of Medicine (IOM) panel report.
In addition to collecting opinions about the proposed name (Systemic Exertion Intolerance Disease or SEID), the survey asked about the naming process involving the IOM committee, about the idea of the government adopting the name without further public dialogue, and about preferred name choices. Participants also were allowed to elaborate on their feelings in written comments. Page Views: 7
The post Survey Results (Pt. 1): Evaluating a Proposed Name to Replace “ME/CFS” appeared first on Paradigm Change.
